may11

May 11th 2016

Up at ugly o'clock

so I could be in North London

for 9am.

this is what I seen when I woke up

I decided after getting gas 

to try the new 

Wonderland extention

which I have used 

to come back to St Thomas

but not to GO TO London.

It was not the quickest route

as the speed limit is 60.

Got to the infusion

EXACTLY at 9am.

I was jolted awake

by the fact that none of

the regular nurses 

were on staff today!

I got on my cozy slippers 

and got out my Disney blanket.

Deep breathing got me through

and although light headed

I didn't pass out.

It was a very long infusion

as these nurses DID NOT

put on a movie for us,

and I did not have my laptop.

Funny thing happened,

last infusion,

I wanted to see a bill for this

maximum dosage,

just to say I seen it and it actually

DID cost as much as they said.

Well much to my surprise...

(and horror)

they charged me this month!

My co-ordinator

is working on this billing issue!

It is not wrong, 

the amount for this infusion is right

just billed to the wrong person.

This is what it will cost EVERY

four weeks for me to be on Remicade.

I know,

that was a scary surprise in the envelope.

I finally finished

tried to go see my GP

but apparently his office

doesn't know he only works at the clinic

in the morning.

So I made an appointment.

Got home just around 1:30pm

and found John had just got home.

We had some lunch

and it was off for a nap.

this is the look I got when I told her naps over

It was beautiful outside

so I spent an hour

basking in the shade.

hahhahahahhaha

Late night surprise visit from Alexandra.

John is bbq'ing tonight.

Burgers, fries and coleslaw.

I am hoping to do some gardening

tomorrow.

I have great hopes that the remicade

will start working again

and I will start feeling better too!

Well

that's all I have from St Thomas.

Good night from John Street