apr4

04 x 04 = 16

April 4th 2016

An emotional day.

With a diagnosis FINALLY

now it is time to reboot

what will become "normal"

for me in my life.

John took me to the specialist

and we learned not only

is my blood count low,

but the iron meds are not working

and it is low,

my liver enzymes are out of whack,

and my body is not

retaining the remicade anymore.

mantra for now......

circa 2016

It's a lot to take in.

BUT!

None of it is a death sentence

and eventually we will come up

with a program that will work again.

I came home

and received tons of support,

and good wishes and prayers,

and reminders that I am strong.

I don't feel strong!

I don't feel like fighting again!

BUT

if it means I will get another

(almost) 5 years of a relatively

sane life and some idea of remission,

I will have my little pity party

and then get to it.

circa 2001,

the first MAJOR crohns fight

I had after diagnosis at 19

NOT the birthday gift I wanted

this month,

but it could have been much worse.

John kept me

interested in the travel books

we picked up.

Alaskan cruise not being an option

with the dollar so poor,

we are going to go

to an all inclusive island vacation.

Judy was home tonight

and we watched a bit of tv,

and ate homemade mac and cheese.

but I am exhausted

so Good night from John Street.