aug5

August 5th 2015

Some days it is easier to say what

IS NOT hurting

than to say what is.

Today was Remicade day.

As most anyone who knows me already knows,

I have a very severe reaction to needles.

My body just likes to pass out.

So when I walked in the clinic today

and found out the nurse who has been doing my IV 

for 4 1/2 years now,

and I trust explicitly,

has been given a promotion

and would no longer be there......

well my very low blood pressure 

bounced into the stratosphere.

As I had no idea this promotion had happened

I did not have my anti-anxiety meds with me.

Judy held my hand 

and I did pretty well with this new nurse.

(although my blood pressure 

never came back to normal).

We thought some lunch would help

the nasty side effects of having bouncing blood pressure

and the fact that I had been dehydrated

(they had to infuse double the fluids today).

So we stopped at DQ and visited my niece.

When we got to St Thomas 

Judy took me off to try on a few hats

for David and Michael's wedding,

where I will stand in and give David away.

After the second store,

Judy knew it was time for home.

She got me tucked into bed for a nap...

which never happened because my Mom called

and wanted to talk.

I swear if there is a body part

this stupid disease can affect

it has today.

I am sore and tired

and there is no such thing as comfort 

that lasts longer than 15 minutes.

(ok bitchfest over)

I am down and out

but won't be for long

I will beat this sickness

because I am strong

I am tied to this bed

but it won't be forever

I am very sure

I will soon feel much better.

Good night from John Street